A brain injury has a devastating and life-long impact on the child and their whole family. Bones can mend and scars can heal but a brain injury stays with you for life and impacts on everything you think, feel and do. As the child develops, their support needs can change.

Our Regional Child and Family Support Co-Everyone couchordinators are able to provide support during each stage of development, working with a child, their family, teachers, educational specialists, health and social workers, psychologists, and a wide range of professionals to help demystify acquired brain injury in children, and implement appropriate support strategies. Read on to learn more about our regional support. For more information on acquired brain injury click here  to view our jargon-free Factsheets.

Child and Family Support

Regional Child and Family Support Co-ordinators provide children, young people and families with the support that they need in order to live their lives to the full, within their local community. Staff and volunteers within our projects understand acquired brain injury. They have excellent knowledge of local services that families might need. The sort of support that families can expect includes:

  • Practical and emotional support for children, young people and families in hospital and at home
  • A national helpline offering support to children, young people and families across the UK
  • Support for children and young people in education
  • Social opportunities for children, young people and families
  • Training and information for parents and carers
  • Useful leaflets, booklets and other resources
  • Informative website and Facebook page
  • Small grants programme

We currently have dedicated Child and Family Support projects in the following regions:

  • Scotland
  • Northern Ireland
  • North of England
  • The Midlands
  • East of England
  • Central Southern England

We also have a national Helpline offering support across the UK, linking with the national Child and Family Support team and a wide network of services and professionals across the country.

Referrals

Referring to the Child Brain Injury Trust couldn’t be easier. The Trust’s priority is supporting children, young people and families and so we have a flexible, accessible referral process in all our projects.

There is some essential information that we need before we can work with families to ensure accuracy of information and that children/young people are being treated fairly and are kept safe. For this purpose we will ask specific questions during the initial phone call or home visit.

Who Can Refer?
Referrals can be made directly by parents/guardians/carers that have legal responsibility for a child with an acquired brain injury, or anyone who has the permission of the parent/guardian/carer such as teachers, doctors, social workers etc.

Children/young people with an acquired brain injury can also refer themselves, but we encourage them to speak to their parent/guardian/carer first as the injury impacts on the entire family, and support is more effective if the child/young person has a support network.

When to Refer?
There is no time limit on referring to the Child Brain Injury Trust. Generally the earlier the family has access to support the quicker appropriate systems of support can be put into place. We would therefore encourage a referral as soon as possible after the onset of the injury. However, we support children/young people and their families throughout their development into adulthood. You can therefore refer to us at any point up to the child/young person’s 18th birthday.

PLEASE NOTE: We will support young people up to around 22 years of age, but after the age of 18 the injury generally falls into the adult services remit, and the challenges faced as a result of the brain injury are often very different. Therefore, we would not usually take on a new referral after the age of 16 unless we were sure there was some value we could add to their support needs.

We would however work with our counterparts in adult services to ensure a multi-disciplinary support approach.

How to Refer?

  • Contact our National Helpline on 0303 303 2248 or via helpline@cbituk.org (staffed Monday – Friday, 9am to 5pm and with a voicemail facility outside of these times). Calls are charged at no more than national rate calls to standard UK landline phone numbers starting with 01 or 02.
  • Contact one of our Regional Child and Family Support Coordinators

 

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