Children with acquired brain injury can feel like their lives have been turned upside down with no explanation, and it’s hard no longer to be seen for who they are – but only for their disabilities.
Brothers and sisters can feel isolated, guilty and terribly anxious about the new circumstances, often craving some attention, or else feeling responsible in some way.
Parents suddenly have a child whose future completely depends on how they manage the new situation. They must become experts in their child’s health, work through a massive amount of new information and new issues, manage family affairs (which continue regardless), as well as deal with their own reactions to what has happened.
Friends and extended family are often unsure how to relate to the child involved, feel worried and upset by what has happened, and want to help as much as they can, but are often not sure what to do.
The Child Brain Injury Trust recognises that often it is a daily struggle for families to retain a sense of ‘normality’ in their lives, and also how important this sense of normality is so that families can continue to get the most out of life and enjoy being with each other.
We offer a person centred approach that places the child/young person and their family at the centre of the care pathway, in line with the guidance and requirements of the Mental Capacity Act (2005). This ensures that the family is involved in establishing their priorities for support and are fully informed and involved in the decision making process, in particular relating to:
- Discharged from hospital and reintegration into their community
- Rehabilitation and long term medical treatment
- Returning to education
- Welfare and benefits
At the centre of everything we do at the Child Brain Injury Trust are the families we support. We often enter the lives of these families at times of great crisis and tragedy. We do all we can to support the entire family and make sure they have access to local services that can meet their support needs.
To view some families we have helped, please visit our Case Studies page.
For more information on how we can help, please visit our Parents and Professionals page page.