Action for Brain Injury Week – Janet Grew Blog Post

Home/Campaign, News/Action for Brain Injury Week – Janet Grew Blog Post
  • Sophia with her siblings Easter 2014

In July 2011, Sophia Grew contracted viral meningitis at birth which led to her acquiring a brain injury. This was a difficult time for the whole family as she developed cardiac problems and a bleed to the brain as well as going into major organ failure. Sophia was on life support for 8 weeks and in Hospital for 10 weeks. Sophia’s mother, Janet, shares her experiences of acquired brain injury.

After Sophia was discharged from Hospital we were left very much on our own. We still had a very sick baby. I turned to outside agencies to seek support. In hindsight the aftercare was not very good. It was not co-ordinated. I had to contact one of Sophia’s consultants to get her referred to the local Child Development Centre, from then on in things started to improve.

The thing with Sophia was she was so ill and had never been expected to survive.

Sophia in Hospital

This had a huge impact on our oldest child who was 8 when Sophia was born. It had been extremely difficult for her. She understood what was going on and she, with us, was prepared that Sophia may pass. Her behaviour was greatly affected by this. It had an impact on everything; her whole coping mechanism was damaged. She developed attachment disorder. It was a very difficult time that we are still working through.

Prior to Sophia’s meningitis, I just thought of children who had an accident as those who acquire brain injuries. As a mum of 4, to be honest, I never thought that an acquired brain injury could happen to a baby. I never considered meningitis as a brain injury. It was one of those things as a parent you don’t ever feel you will need to think about.

I suppose I always thought that it was the very extreme. I see that every day now, even with our family dismissing that there is something wrong with Sophia. They simply think because she can walk and her speech is improving that she is alright. They don’t see her daily struggles, her falling all the time, not sleeping, or crying more than the average child.

Sophia is unique and I get annoyed that people will not accept that she might have problems. She has problems with her eyesight, memory, coordination and behavioural issues. But people dismiss what she has been through and what she is going through. Brain injury really is a silent illness.

If I could offer other parents one piece of advice, it would be to question everything and everyone when your child is sick. As my husband Jim said when Sophia was critically ill on life support “we are not here to make friends we are here to get Sophia home.”

I also feel it is essential to seek support. It’s impossible to cope without it and always be mindful of your other children, as sometimes they are forgotten about.

The Child Brain Injury Trust has been marvellous, providing us with support and information. It has helped our whole family including the kids who have learned a lot about brain injury. The Trust’s sibling days enabled them to feel special, which is so important when so much time and attention has been given to Sophia.

Louis Vuitton Insolite Wallet Pm Fleuri Monogram Canvas Brown M60229
Louis Vuitton Epi Neverfull Black
Authentic Louis Vuitton Damier Tote Bag
Louis Vuitton Price At Malaysia
Louis Vuitton Rucksack Mens
Louis Vuitton Mahina Xl Dimensions
Louis Vuitton Women Wallets Snapped Billfold Coin Purse Brown M61654
Louis Vuitton Mirabeau Gm Epi Leather Black M4034N Handbags
Louis Vuitton Evora Mm Damier Ebene Canvas Brown N41131
Louis Vuitton Monogram Sunshine Express Speedy M40794 Bordeaux
Louis Vuitton Pochette Pallas M60608 Black Handbags
Louis Vuitton Long Heels Red Bottoms
Louis Vuitton Amsterdam Online
Louis Vuitton Monogram Vernis Alma Gm Bag Dark Red
Louis Vuitton Damier Ebene International Wallet
Louis Vuitton Classic Monogram C00920 Briefcase
Louis Vuitton Ss 2013 Campaign
Louis Vuitton Duffle Bag Small
Fake Cheap Louis Vuitton Handbags Officail Website Uk 2013
Louis Vuitton Taiga Lozan Briefcase
Louis Vuitton Saumur Pm Monogram Idylle Sepia M40669 Handbags
Louis Vuitton Acetate Frames Z0220W Divine Darkhoney Grey Rose Pop
Louis Vuitton Website Tax
Louis Vuitton Women Wallets Zippy Wallet Illustre Turquoise M60291
Is Louis Vuitton Cheaper In Us Than Canada
Louis Vuitton Luggage Repair London
Louis Vuitton Black Shoulder Bags Uk
Louis Vuitton Crystal Earrings
Louis Vuitton Women Sunglasses Viola Orange Z0467U
Louis Vuitton Outlet Onlinese
Louis Vuitton Shoes Men Loafers
Quality Replica Louis Vuitton Bags
Louis Vuitton In Kuwait City
Louis Vuitton Outlet Online Real Sale
Louis Vuitton And Dior Parent Company Sees Sales Growth Lower Than Forecast
Louis Vuitton Mahina Replica
Louis Vuitton Malaysia Mid Valley
Louis Vuitton Replica Clutch Handbags
Sacs Louis Vuitton Alma Pm Taurillon Noir Q48878
Emirates Team Nz Win The Louis Vuitton Cup
Sacs Louis Vuitton Tambour Disc Or Marron Z261B11
Louis Vuitton Luggage Pegase 65
Louis Vuitton Damier Azur Canvas Noe
Louis Vuitton Au Rhinestones Buttery Clip De Cabello En Mujeres Negras
Louis Vuitton Monogram Wristlet
Are Louis Vuitton Bags Cheaper In Usa
Louis Vuitton Women Handbags Artsy Gm Beige N41173
Louis Vuitton Kenny West
Louis Vuitton Top Handle Speedy In Glitter
Louis Vuitton Bags In Dubai Duty Free
Louis Vuitton Soldes Blanc Sac Louis Vuitton Pas Cher
Louis Vuitton Jongleur Damier Geant Canvas Blue Ocean N48089
Louis Vuitton Speedy 30 Monogram Canvas
Louis Vuitton Replica Purses And Handbags
Louis Vuitton Italy Online Shop
Louis Vuitton Fall 2013 Bags
Cheap Louis Vuitton Tivoli Pm
The Grand Opening Of A Louis Vuitton Jewelry Store In Paris
Louis Vuitton Ladies Coffee Bags
Authentic Louis Vuitton Damier Azur Galliera Pm
Louis Vuitton Underwear Women
Louis Vuitton Damier Azur Canvas Neverfull Pm N51110
Louis Vuitton Accessories Purse Forum
Portefeuille Louis Vuitton Insolite Portefeuille Monogram Multicolore Litchi M93751
Louis Vuitton Mens Shoes Boots
Louis Vuitton Damen Show Herbst
Louis Vuitton Women Handbags Alma Ivory M5280J
2010 Louis Vuitton Wallets
Louis Vuitton Date Code Epi
Louis Vuitton Cross Body Bag Ebay
Louis Vuitton Monogram Vernis Vanity Gm M93511
Paper For Louis Vuitton Agenda
Louis Vuitton Damier Ebene Canvas Bags N41124
Black Louis Vuitton Scarf
Louis Vuitton Delightful Mm
Louis Vuitton Tote Neverfull Mm
Louis Vuitton Decal
Brief History Of Louis Vuitton Company
Louis Vuitton Neo M40372
Louis Vuitton Limited Edition Speedy Graffiti Handbag
Louis Vuitton Women Handbags Cabas Rivington Brown N41108
Louis Vuitton Speedy Price New Louis Vuitton Alma Jim Price
Louis Vuitton Women Travel Passport Cover Brown M60181
Christian Louis Vuitton Shoes Prices
Louis Vuitton Aventura Mall
Louis Vuitton Trevi Gm Damier Ebene Canvas Brown N51998
Louis Vuitton Wallet For Sale
Louis Vuitton Handbags Cheap Sale
Louis Vuitton Bellagio
Louis Vuitton Jobs Charlotte Nc
Louis Vuitton Belts Lv Initiales Epi Leather Belt Black Cassis Grenade Ivory Rubis M9606U
Kate Moss Walked Louis Vuitton In A Completely Sheer Dress
Vintage Louis Vuitton Monogram Shoulder Bag
Wts Louis Vuitton Bracelet
Louis Vuitton Men Wallets Key Pouch Glacier M32603
Louis Vuitton Speedy B 35 Price
Louis Vuitton Summer Collection
Louis Vuitton Uk Colorful Charm Padlock Silver Bracelet
Sacs Louis Vuitton Bracelets Leomonogram Wide Bracelet Or Rouge M65928
Louis Vuitton Website Is Down
T Hennessy Louis Vuitton Company Profile
Cheap Cell Phone Cases Louis Vuitton Iphone 5 Case 101
Reserved For Jamie Louis Vuitton Speedy 30 Monogram Canvas French Comp
Louis Vuitton Le Catalogue Book Magazine Maroquinerie 231 Pages Vintage
Louis Vuitton Sarah Wallet Vernis Amarante
Louis Vuitton Python Artsy Bag Price
Louis Vuitton Speedy 35 Inside Louis Vuitton France Officiel
Louis Vuitton Alma Bb Handbags M91606 Pink
Sales Of Delightful Louis Vuitton
Louis Vuitton On Sale
Sac Voyage Louis Vuitton 6089 Image Louis Vuitton
Michael Clarke Louis Vuitton Trunk
Louis Vuitton Mens Hat
Louis Vuitton Sunglasses No5687
Louis Vuitton Epi Leather Bowling Montaigne Gm M5931J
Authentic Used Louis Vuitton
Designer Bedding Louis Vuitton
Louis Vuitton Women Handbags Speedy Round Yellow M40709
Louis Vuitton Damier Ebene Business Card Holder
Louis Vuitton Purses Made In Spain
Replica Louis Vuitton Iphone 3G Case
Louis Vuitton Lucite Earrings
Online Store Louis Vuitton
Ebay Replica Louis Vuitton Wallet 2012
Louis Vuitton Fall Winter 2012 Mens Shoes
See His Stunning Final Louis Vuitton Show
Louis Vuitton Monogram Canvas Ellipse Mm
More Louis Vuitton Trophy Regattas Announced
Replica Designer Bags Louis Vuitton
Louis Vuitton Never Used Blue
Fake Louis Vuitton For Sale
Louis Vuitton Outlet Nj Zip
Vintage Louis Vuitton Paris France Travel Lugage French Co
Louis Vuitton Purse
Replica Louis Vuitton Coin Pouch Men
Louis Vuitton Desk Agenda Cover
Louis Vuitton F
See Michelle Williams’S Ad For Louis Vuitton
Louis Vuitton Ballerina In Pat
Where Is The Date Code On A Louis Vuitton Neverfull
Louis Vuitton Damier Azur Canvas Neverfull Mm
Louis Vuitton M47270 Monogram Canvas Deauville Travel Bag
Women Louis Vuitton Casual Shoes 06018 Black
Louis Vuitton Damier Print Shirt
Louis Vuitton Epi Noe Petit Leather Handbag Authentic Pre Owned
Louis Vuitton Women Sunglasses Rose Carmin Glitter Z0337W
Louis Vuitton M40107 Bosphore Backpack
Louis Vuitton Monogram Speedy 30 Bag
Louis Vuitton Roman Pm Glacier M32700 Handbags
Louis Vuitton Alma Epi
Authentic Louis Vuitton Outlet Stores
Louis Vuitton Globe Charm Key Ring
Authentic Louis Vuitton Manhattan Gm
Louis Vuitton French Wallet Monogram Vernis Orange M93652 Handbags
Louis Vuitton Italy Handbags
Louis Vuitton Joey Wallet Epi Leather Rubis M6658M
Louis Vuitton Pochette Accessoires Damier Azur
Louis Vuitton Women Wallets Sarah Wallet Brown N61734
Real Louis Vuitton Belt On Sale
Louis Vuitton Neverfull Gm Organizer
Replica Louis Vuitton Handbags With Paypal
Louis Vuitton Lock Me Necklace
Are Louis Vuitton Cheaper In Korea
Louis Vuitton Shoes Review
Louis Vuitton Strengthens The Link Between Art And Store In Venice
Vintage Louis Vuitton Earrings
Louis Vuitton M58014 Monogram Multicolore Koala Wallet Blanc
Louis Vuitton Tovoli Purse
Louis Vuitton Sailboat Necklace
Louis Vuitton Handbag Catalogue
Hudson Gm Louis Vuitton Purse
Louis Vuitton Fashion Jewellery Uk
Louis Vuitton Alma Bag Sale Uk
Louis Vuitton Leopard Stole Scarf For Sale
Louis Vuitton Launches Young Artists Project
Louis Vuitton Cabas East West M85129 Handbags
Louis Vuitton Logo Jacket
Speedy’ Bag Collection By Louis Vuitton
Strong1K Louis Vuitton White Evidence Millionaire Sunglasses Ghw Square Frame
Louis Vuitton Epi Leather M11530 Coffee Leopard
Louis Vuitton Watches Dubai
Louis Vuitton Outlet In New York Address
Cheap Louis Vuitton Bags On Ebay
Louis Vuitton Sydney Window Display
Pre Owned Louis Vuitton Las Vegas
Cheap Luxury Outlet Louis Vuitton
Louis Vuitton Mini Lin Ebene Speedy 30 Bag
Louis Vuitton Outlet Woodbury
Louis Vuitton Bow Heels
Louis Vuitton Alma Monogram Vernis M91444
Louis Vuitton Handbags Sale India
Louis Vuitton Handbag Alma M53151
Louis Vuitton Limited Edition Trianon Canvas Lilac Ostrich Sac
Louis Vuitton Wedge Trainers
Louis Vuitton Spring Monogram Vernis Patent Leather Handbag M91708 Rose
Louis Vuitton Trunk Painting
Ipad Mini Louis Vuitton Cases
Louis Vuitton Fleur De Jais Speedy Replica
Louis Vuitton Women Belts Voyage Belt Blue M9837S
Louis Vuitton Monceau Bb Mimosa M40979 Handbags