Feedback

Everybody has their own story to share about how their family has been affected by childhood acquired brain injury.  We would like to thank all those people who have already shared their experience and feedback.

Dear Jennifer,

 I just wanted to drop you a note to say a big thank to you for your help and effort regarding the presentation of our son.

 You have helped us as a family immensely in your function as representative of the Child Brain Injury Trust. You were able to present and explain the difficulties following acquired brain injury in every-day functioning exceedingly well to the various groups of professionals our family is involved with. I have been present at your talk to Social Work and community support representatives and I was impressed. I admired your professional presentation which was perfectly aimed at the recipients including a question and answer session. You presented and explained the sequela of acquired brain injury with special consideration to our son’s presentation who is affected by marked impairment of social and verbal communication difficulties. You offered us as a family a chance to contribute and ‘personalise’ your talk with the experiences our son has made in the school environment, at home and in respite settings. This in turn helped the professionals understand the difficulties our son faces far better than before.

 In addition, you have supported our daughter in understanding better what brain injury means to her interaction with her brother. 

 You represent a very much needed professional support and voice for affected families in interactions with other professional agencies including the NHS but in addition, you have offered kind and insightful interaction with us, a family in need of support. I am very grateful for all the work you have offered to us as a family. I am delighted that you are able to work for families like ours for the Child Brain Injury Trust.

 

Mum

On 2nd May 2017, at the age of 15 I had a stroke. Initially the help and support I received from the medical professions was extremely slow.

When we got home from hospital, my mum got in touch with the local Stroke Association, unfortunately they were unable to offer any other help than support, as I was under 16.

My mum then joined a Facebook group page called ‘My child had a stroke’, where she found out about Anna Panton, Childhood Stroke Project Manager for the Stroke Association, who then put us in touch with Maria Wilson, Child Brain Injury Trust, Child and Family Support Coordinator.

Maria has been a fantastic support to me, also my family, school and medical professionals. I would like to thank them, Dr Curran my neurologist and my family for their continued support.

Ethan-child with an acquired brain injury

Hi Kelly,

I’m raving about you to everyone!!

So much positive feedback from staff, they’re still talking about it!

We’re doing initial ACE training this term but will be working on this all year so may be in touch!

Thanks again for the session, it was fab!

Siân-Assistant Head 3-14 / Makaton Regional Tutor